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The Nightscout Foundation, an online diabetes community, figured out a workaround for the Pebble Watch. Groups such as Nightscout, Tidepool and OpenAPS are developing open-source fixes for diabetes that give major medical tech companies a run for their money. One major gripe of many tech-enabled diabetes patients is that the two devices they wear at all times -- the monitor and the pump -- don't talk to each other. For many years, the community has been waiting for a "closed-loop" system, often referred to as an artificial pancreas, through which the insulin pump could respond automatically and in real time to the monitor's readings.
For as long as pumps and sensors fail and need changing at the drop of a hat, diabetes will never be a hands-off disease to manage, but an artificial pancreas is basically as close as it gets, The FDA approved the first artificial pancreas -- the Medtronic 670G -- in October 2017, But thanks to a little DIY spirit, people have had them for retro 70s color palette iii iphone case years, Take Dana Lewis, founder of the open-source artificial pancreas system, or OpenAPS, Lewis started hacking her glucose monitor to increase the volume of the alarm so that it would wake her in the night..
From there, Lewis tinkered with her equipment until she created a closed-loop system, which she's refined over time in terms of both hardware (she uses a Raspberry Pi) and algorithms that enable faster distribution of insulin. It has massively reduced the "cognitive burden" on her everyday life, she told me over email. She no longer has to constantly think about diabetes before, during and after everything she does. Hacking a glucose monitor is not without risk -- inaccurate readings, failed alarms or the wrong dose of insulin distributed by the pump could have fatal consequences -- but as with much of the highly inexact science around diabetes management, some people believe it's worth the tradeoff. Lewis and the OpenAPS community encourage people to embrace the build-your-own-pancreas method rather than waiting for the tech to become available and affordable.
They aren't alone, JDRF, one of the biggest global diabetes research charities, said in October that it was backing the open-source community by launching an initiative to encourage rival manufacturers like Dexcom and Medtronic to open their protocols and make their devices interoperable, "This would allow seamless, secure connectivity between devices -- much as your cell phone and personal electronics are able to connect wirelessly," the charity explains in a blog post, Just like every tech option for diabetes, choosing to use a closed-loop system is a decision heavily dependent on personal preferences, "An automated insulin delivery system is a different way of dealing with diabetes," Lewis said, "You have to learn to build trust, and learn what to do differently, and how to use the tools to best help you achieve your goals."Kathryn told me it's not something she'd be willing to experiment with for her daughters, but she understands why people do retro 70s color palette iii iphone case it, "If it were me [with diabetes], I'd be straight on that," she said..
Although experts like JDRF Research Director Daniel Finan believe the DIY route is safe, those methods won't have gone through rigorous tests performed by regulators, which means they remain in the Wild West territory of tech for now. Gradually this is changing. Along with Medtronic, US-based startups such as Bigfoot Biomedical and Beta Bionics are attempting to bring officially regulated artificial pancreases to market. Lewis is encouraged by JDRF's initiative and can see a day commercial devices will catch up to what the DIY community is doing, but it's a question of time.
"I think it's likely going to be the second or third generation of these devices that get to where we DIYers are today, and especially around the needed interoperability and retro 70s color palette iii iphone case flexibility to really allow an individual to have this technology fit their particular lifestyle," she said, In the meantime, even incremental updates to existing tech have the potential to make massive differences in the lives of people with diabetes, Dexcom last month introduced its latest device, the G6, which is the first continuous glucose monitor that doesn't require calibration via a fingerstick, a needled device used to take diabetes measurements..
The update to the girls' G5 monitors won't require fingerstick calibration. That's a huge deal because you have to prick your finger with the fingerstick to get the measurements -- multiple times a day. Continuous glucose monitors have reduced the use of fingersticks, but until the G6, monitors still required calibration, sometimes up to twice a day. "When it comes to the treatment of diabetes, the most dreaded thing is the fingerstick," said Dexcom CEO Kevin Sayers in an interview. "They just flat out hurt."Dexcom is the first company to successfully make sensors that don't need this constant recalibration.
"Think about if you're the parent of a child," he said, "You've got to wake up in the middle of the night and stick your child's finger two or three times." The consequences aren't just that it is retro 70s color palette iii iphone case uncomfortable for the child, but leaves both the parent and child exhausted, Sleeplessness is something Kathryn and her husband experienced a lot in the early stages of Ruby's diabetes diagnosis, Using Dexcom's monitors with an alarm that goes off if glucose levels go haywire has helped remedy this, It's one of a list of reasons she favors it over other monitors, even though the girls have a Medtronic pump, which means she has to have two apps on her phone (and on theirs) and two sets of data to analyze..
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